FAQ

Frequently Asked Questions

This page is mostly for those doing research projects or something of the like about Treacher Collins syndrome. I have many people emailing me questions for their research project, and often the questions are very similar. So to save time for everyone, I posted the answers to some of the more frequently asked questions. The answers to more questions will be posted at a later date.

Q: Can I use information or pictures from your webpage for my report/project/research paper/etc.?
A: Yes, you are welcome to use any info contained within my webpage as a resource for info about TCS. You are also welcome to use pictures of me only (although I'd appreciate if you'd email me and let me know what they were being used for.) **NOTE: Please do NOT use the information or pictures contained on any of the Guests' Corners sites, unless you email the author of the site directly and ask for and receive their permission. Most of the authors have their email addresses at the bottom of their guest corner.** Also, please do not copy what I have written word-for-word unless you are using something as a direct quote. Unless it is quoted, copying someone else's writings is plagiarism. If you do use any info from my page or a direct quote of mine, please give credit where credit is due. (I don't mean to belittle anyone's intelligence, but believe it or not, I have had an incidence with someone plagiarizing my writing from my website.)

Q: Can you send me more info on TCS?
A: No. All the info I have is on my webpage, or can be found on the other websites to which I have links to on my links page.

Q: What is TCS?
A: Treacher Collins Syndrome is a genetic, craniofacial birth defect. About one in ten thousand babies are born with it. It is characterized by depressed cheekbones, malformed or absent ears, a receding chin, and down-slanted eyes.

Q: What is the cause of TCS?
A: TCS is caused by a mutation in the genes. A child can inherit TCS from his parent(s) if one or both of his parents have it. A child can also get TCS via a random genetic mutation that occurs during fetal development.

Q: Does TCS get worse with time?
A: TCS does *NOT* progress or worsen with time. For example, a person who is born with a mild case of TCS will *NOT* develop a more severe case of TCS as time goes on.

Q: What is the lifespan of someone with TCS?
A: TCS does not inherently shorten someone's lifespan. Some babies are born with very severe cases of TCS and can die in infancy due to airway or other complications. Otherwise, people with Treacher Collins syndrome will live as long as the average person.

Q: Do you have a hearing loss?
A: Yes, I have a severe bilateral conductive hearing loss (about a 60 decibel loss in both ears).

Q: Do you wear a hearing aid?
A: Yes, I wear an bone conduction hearing aid. (See www.treachercollins.org/hrgaid.html) I have almost normal hearing with my hearing aid.

[Home][What's New][Amie's Mask][Parent's Reflections][TCS Connection][Faces of TCS]

[Essay][Pictures][TCS Links][Email Amie]